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PPI Contributors at a PPI Apéro

Partnering with patients and members of the public is a key strategy in clinical research for enhancing, understanding and supporting patient needs. This collaboration allows researchers to tailor the research specifically to those directly affected.

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Patients' and members of the public perspectives and experiences offer valuable insights into clinical study opportunities, enhancing the quality, efficiency, and impact of research.

  • When planning research projects, evidence suggests involving PPI contributors can improve recruitment and retention of clinical trial participants (Crocker et al., 2018).

  • By recognizing that active involvement in research extends to individuals directly affected by clinical research outcomes and members of the public, PPI aligns with current ethical considerations.

  • By actively involving patients and the public, clinical studies become more efficient and effective.

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What is PPI?

Patient and Public Involvement (PPI) in clinical research can be defined as research that is carried out with or by patients or members of the public instead of to, about, or for them.²

² HRA NHS

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Clinical researchers who involve and engage patients and members of the public can help ensure clinical research projects are person-friendly and consider the needs and priorities of people affected directly or indirectly by the diseases or conditions under study.

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Within the DCR, PPI has grown substantially and has become more embedded across the research environment, reflecting a broader institutional shift towards participatory approaches. This expansion is also reflected in increasing external visibility, indicating wider recognition of its role in clinical research practice.

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